Billy got his new DAFO's last week, and of course he hates them. But he did walk in them some yesterday and today. He has not took steps in his gait trainer in about a year. It is possible that he might have been trying to walk "out" of them.
I hate having to put them on him...................After watching Billy suffer through a 4 hour seizure the other night and feeling completely helpless I have been doing some real soul searching. I have been asking myself... Am I hurting him by making him do so much.....wear his DAFO's ( leg splints) wear his arm splints, Physical Therapy 3 days weekly, Occupational Therapy 3days a week, Speech Therapy 2 days a week, home bound school 5hrs weekly, botox injections every 3 months. Constantly seeing some sort of specialist for this or that. At what point does it become too much? At what point will I be able to lye down at night and know that I did enough or didn't do too much? I think the problem has been that I am not listening to him, which is not the easiest thing considering he is non-verbal. Some times I wish I had a "BUBBLE" to put him in, to protect him from everything. Is this realistic??? NO!!! He needs to live, he needs to play, and be a little boy, get his socks dirty , wear out the knees of his jeans ,laugh and smile. Just because he is "Differently Abled" does not mean he cant do these things. He just needs us to help him. I am going to work real hard on him having fun instead of work, work, work all the time. I know he has to do these things but maybe not "so" much. Wish me luck!!
