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WELCOME!!!!

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WELCOME TO BILLY"S PLACE!!!!!

This blog was created by Billy's mom to keep all our friends and family updated on how Billy is doing and what he is up to!

Friday, September 3, 2010


I am the child who cannot talk. You often pity me, I see it in your eyes. You wonder how much I am aware of — I see that as well. I am aware of much, whether you are happy or sad or fearful, patient or impatient, full of love and desire, or if you are just doing your duty by me. I marvel at your frustration, knowing mine to be far greater, for I cannot express myself or my needs as you do.You cannot conceive my isolation, so complete it is at times. I do not gift you with clever conversation, cute remarks to be laughed over and repeated. I do not give you answers to your everyday questions, responses over my well-being, sharing my needs, or comments about the world about me. I do not give you rewards as defined by the world’s standards — great strides in development that you can credit yourself; I do not give you understanding as you know it. What I give you is so much more valuable — I give you instead opportunities. Opportunities to discover the depth of your character, not mine; the depth of your love, your commitment, your patience, your abilities; the opportunity to explore your spirit more deeply than you imagined possible. I drive you further than you would ever go on your own, working harder, seeking answers to your many questions with no answers. I am the child who cannot talk.

I am the child who cannot walk. The world seems to pass me by. You see the longing in my eyes to get out of this chair, to run and play like other children. There is much you take for granted. I want the toys on the shelf, I need to go to the bathroom, oh I’ve dropped my fork again. I am dependent on you in these ways. My gift to you is to make you more aware of your great fortune, your healthy back and legs, your ability to do for yourself. Sometimes people appear not to notice me; I always notice them. I feel not so much envy as desire, desire to stand upright, to put one foot in front of the other, to be independent. I give you awareness. I am the child who cannot walk.

I am the child who is mentally impaired. I don’t learn easily, if you judge me by the world’s measuring stick, what I do know is infinite joy in simple things. I am not burdened as you are with the strifes and conflicts of a more complicated life. My gift to you is to grant you the freedom to enjoy things as a child, to teach you how much your arms around me mean, to give you love. I give you the gift of simplicity. I am the child who is mentally impaired.

I am the disabled child. I am your teacher. If you allow me, I will teach you what is really important in life. I will give you and teach you unconditional love. I gift you with my innocent trust, my dependency upon you. I teach you about how precious this life is and about not taking things for granted. I teach you about forgetting your own needs and desires and dreams. I teach you giving. Most of all I teach you hope and faith. I am the disabled child.

Sunday, May 30, 2010

Life is "great " with my lil man!!!

NO news is good news!!! It has been a while since I have updated, but this is a good thing. At the begining of the year it looked like this was gonna be a year full of hospitalizations and surgeries, But GOD answered our prayers and has given us an amazing last few months. Billy was suppose to have surgery on his right wrist and have his left wrist and hand serial casted. We had to put this off due to some GI problems he was having. Billy's feeding tube became too little and the GI doctor decided it was time to change it (it lasted 5 years) he was afraid to do it in his office due to the fact he was afraid Billy's stomach would shift. He decided to do it in the hospital under anesthesia and scope just in case he needed to go to surgery. That morning we went to the hospital anticipating surgery and all the emotions that your child having surgery bring with it. We arrived at the hospital an 6am and to our surprise we were on our way home 5 hours later with a shiny new button.... Billy did wonderful, the only complication he had was that his button had grown to the lining of his stomach and it took a little force to get it out, but his stomach remained in place and a new button was put in with no problems., he was a little sore and out of it for a few days, but over all he did "AMAZING".
For now we have decided to put his wrist surgery off until it is an absolute "have to". I am so tired of watching my lil man endure soooo much.....it is time for a break!!!!
Billy has done so much in the last few months in school and has even started playing base ball (challenger). Playing base ball is something I never thought I would get to see my boy do, but he is doing it and loving it. I fight back the tears every time I see him in his uniform on that field and hitting the ball. Of course he has help..... Brittany has been being his buddy except for last night Steve and I took turns being buddies. This baseball team is the most amazing thing you will ever see....... Every one should take the time to watch a Challenger base ball game, its really good for the heart. Special needs kiddos are the most perfect kids...they are always all about being happy and making every one around them happy.I am so thankful that God has blessed me with this knowledge and the opportunity to be part of so much perfection. I have always said and believe with every thing in me that a special needs person is the closest you will get to God on earth!!!! I just wish people in our society would open there eyes and see what I see and except my child for the perfect lil man he is instead of acting like he is freak or contagious.