I really cant wait to start posting about good stuff, fun stuff or just good health stuff.
But for now I am going to post about this not so fun day. We had to take Billy back to the Pulmonologist today. He has been having trouble breathing. He is fine when he inhales but struggles with his exhale. What was the answer from the Pulmonologist????? No clue. Don't get me wrong , this is the best doctor ever he has been my saving grace for almost 11 years. The problem is Billy's saturation's are awesome, he sounds good and has no other symptoms. He is just having trouble exhaling. His whole chest and stomach sink in. We took him for a chest x-ray and will find out the results tomorrow. Steve and Dr Mohan decided they think it is neurological, thinking it is stemmed from the status seizure. I on the other hand do not feel comfortable guessing. I want facts. The thought of something happening scares me to death, I can't imagine having to do CPR on him because of something that could have fixed or prevented. I know I am being paranoid but I am a "mom ", that's what we do!!!!!
Please keep Billy in your prayers, I am praying that dad and doc are right after all the test come back.
So once again we are playing the oh so dreaded "Waiting Game"
